We spent Sunday night in West Middx Hospital, with Sarah's temperature being monitored every 4 hours - every time the Calpol wore off, it spiked again, but not so high, so they stopped the antibiotics Monday lunchtime. The blood cultures they took at UCH and West Middx were all negative so it looks as though she just picked up a virus.We spent one more night in West Middx and so I woke up on my birthday on a hospital camp bed!! No Bucks Fizz for me!!! We got to go home just before lunch as Sarah had not had Calpol for 18 hours and her temperature had stabilised. Sarah made a rapid recovery, and she made me take her and Katie to Pizza Hut for a birthday lunch!!
We got to spend last night in our own beds before being collected in hospital transport at 9.30am to come back to UCH for chemo.
First she had to have a hearing test - last time, she had a poor test so they repeated it - this time it was a terrible test!!! She has lost the ability to hear high pitched sounds, and also some low pitched sounds, although I am convinced it was so bad because she was half asleep-whilst she was doing the test her eyes were closed, and she was nodding off!! Because of the result of the tests, the doctors have taken Cisplatin (the worst drug) off this week, and are only doing Doxorubicin, which lasts 48 hours instead of 72.Cisplatin is the one that affects your hearing and they don't want to make it worse.They will re-test again before we do week 1 again in 4 weeks, and if it is just because she was sleepy and the test is better, they will add the last Cisplatin back in - if not, then they won't give it at all.They don't want her to need hearing aides!! It just adds to the worry for us - if its not one thing, its another!!
On the plus side, Sarahs favourite physio, Claire, came back from holiday, so Sarah got out of bed with no brace on, stood up for her on a walking frame and walked up to the end of the corridor AND BACK!!! Then, while I was out buying dinner, she got out of bed ON HER OWN and went to the loo, walking all the way on the frame - up to now, I have been having to hold her leg up off the floor while she sits - I think we've turned a corner!!She then went on the bending machine and quite comfortably got to 60 degrees. She's doing brilliantly, and has spent all day with no brace on - not just while lying down.
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hi Sarah
congratulations you're finaly out of your wheelchair you can actually walk i am soooooooooooooo happy.
it was our first day at school today it was great but it would have been better if you were there. we got our diaries and we got three pieces of homework not hard homework we just had to cover three of our writing books. we had two proper lessons which were english and french. are form tutor is really nice she is called miss Dolan you will really like her.
hope to see you sometime at school.
lots and lots of love Jannekexxxxxxxxxxxxxxxxxxxxxxxxxxxx
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