Not much to report this week, as chemo has been a doddle - we have come to the conclusion that the Cisplatin (the drug they have removed this week) is the one causing all the sickness, and Doxorubicin is fine - all she has are dark circles under her eyes, as the liquid is red, but that fades over a week or so.There has been no sickness, or loss of apetite, and if anything she is more chatty than usual and has been a real pest!! The nurses think she's funny, but it gets pretty wearing after a whole day listening to it!! I asked if they would sedate her but they wouldn't for some reason!!!
She's been up and walking, when we can persuade her not to be lazy, and uses more excuses to stay in her wheelchair than I could have imagined! She's been given goals by the physio, so fingers crossed she will do them at home.The brace came off Wednesday morning, and hasn't been on since, so progress is being made every day. Still not much weight on it, but she's up off her backside!!!
Last night, she was so hyper all day that she conked out just as Eastenders was starting at 7.30pm and I had to wake her up at 10am this morning!!
Temperature has been down all week, so the dreaded virus has been sent packing at long last. She has been to play this morning and is at school as I am writing this - only another couple of hours and we can go home for a week - yippee!!! Will take her shopping for new school shoes on Sunday, and then she hopefully will get to school next week to meet all her new class mates. I spoke to Dr Maria this morning about her hearing test, and she agrees with me that I would have noticed a change if her hearing has been affected as much as they say, so she is going to retest and think again in 4 weeks!!Our slight change in timetable now means that she will be in hospital for her friend Jack's last week in 2 weeks time, so she is pleased about that too - its not all bad!!
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3 comments:
Hi girls! This is all brilliant news and you look fabulous on your frame Sarah! Rose has a little green one which is very cute and now the smallest pair of crutches in the world but is still refusing to put weight down so we are being packed back off to Stanmore on Monday for some serious rehab! Glad you will be in for Jack's party - just can't believe how near the end he is that's very inspiring we will all be finished soon. We were going to try to pop in yesterday as we were round the corner seeing Mr Briggs but ended up running late so waved to uch tower as we drove by - definitely love to see you both soon. All love from rainy south London xxxxx
Hi all
Glad it's going so well! Good news about the hearing also. (Didn't know that was a side effect ...)
Hope the new school is fab also.
We're starting new school tomorrow which is all very nerve wracking or exciting, depending on how you look at it!
Love from Ruth & Becca xxx
Hi you
Great news about the non-appearance of sick!!! Also, you are looking great on that walking frame. Keep up with the exercises and be a LITTLE bit braver and you will soon be getting about on your own. Good luck if you get to school this week. See you soon. Auntie Janice xxx
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