Thursday 11 September 2008

Thursday 11th September

Our lives have had an injection of something resembling normality this week, and its come as a bit of a shock!!!! Came home from UCH on Friday, a day earlier than we thought because of the omission of the nasty drug, and with Sarah still on a bit of a hyperactive trip!! I went to Teddington's hockey trials Saturday morning and then went to watch Katie play a couple of matches in the afternoon, which is my normal Saturday routine!!
Sunday , I took Sarah down to her hockey to see her friends, so she could show them all her scar (!!) and then shopping for school shoes, and Katie had more hockey trials, for South of England this time, followed by another drive back to school in Mill Hill at 8.30pm.
Monday and Tuesday, Sarah went to Thames Young Mariners with her new secondary school, for team building days - they built rafts, played team games and went kayaking and sailing. Sarah enjoyed herself by bossing everyone around telling them what to do! She even got a ride in a motor boat to cheer on the raft race from the water.
Wednesday, and for the rest of this week, she is at school properly, and having a great time! She has nice teachers all sympathetic to her plight and everyone is trying to accomodate her where they can - all her classes except maths are on the ground floor, so she doesn't have to be on her own.She is joining art club with her friend Georgia, so that will keep her out of mischief during lunchtime. She has access to the disabled loo, and she is managing to go to the loo by herself, which is a relief for everyone!
On the walking front, she is stubbornly refusing to push herself to do physio, and still won't put any weight on her foot. The physio came to our house yesterday and following Sarahs refusal to co-operate and her general stroppyness, she scuttled away mumbling something about usually only dealing with 5 year olds who do as they are told!! I think she might send someone else next time - she wasn't pushy enough to deal with Sarah and her hormones.........I only hope Claire at UCH has more luck or I can see us joining Rose at Stanmore as an inpatient, for intensive physio, and some REALLY hard work. I keep threatening, but its just not working and I feel totally useless.
On top of these goings on, I have been at work everyday since Tuesday, and the 7 o'clock alarm is getting irritating now!! We have to be out of the house by 8 o'clock to get Sarah to school on time, and then off to work until 5.30pm - I am totally knackered. Still, some time away from the stroppy one is doing us both good - I can then be more tolerant with her, and she is ever-so-slightly less stroppy after not seeing me all day! Oh the joys of getting back to normal - how did we all cope before becoming institutionalised?? Where did I get my energy from............??

4 comments:

Mike and Jan said...

Hi Sarah

Great news that you are able to go to school this week. BUT.....what has happened to the physio???? Try hard sweetie, it really will be worth it in the end.

Lots of love

Auntie Jan xxxx

It's me - Ruth! said...

Back to school! Well done Sarah!

Love from Ruth & Becca x

Anonymous said...

Hey Sarah,
I've just got back from a very hot and sunny holiday in Greece!
I've been catching up on your blogs and it's great to see you are trying to get up and about. Try and put a little bit more weight on your foot each day hun - you know how much you'd love to get back to hockey and swimming!
Sending you lots of love, Jo xX

Rose said...

Hello Sarah and Zoe - what an exciting week you've had! New school sounds brilliant and so glad they being accommodating - we having a bit of an issue with Rose's school they've put her Year 2 classroom on the 1st floor! Duh! Blaming building works but it's just rubbish - got Marsden nurses going in next week to try to sort them out!

Done a week at Stanmore - don't worry if you get admitted Sarah you'll love it! Total doss! Two half hour sessions a day and then hours and hours of playing with Zoe and Hilary and of course Mummy! Big man Briggsy wants her back Monday to Wednesday next week for a bit more - as not very much progress made!

Very excited to hear from you guys that last two cycles a week shorter - was wondering how you'd worked it out to finish in November and now I've finally caught on!

Keep doing the exercises Sarah - but don't worry. Rose still putting absolutely NO WEIGHT down at all and Stanmore very very reassuring.

Loads and loads of love from us all Charlotte and Rose xxxxx